Find A Youth Mentor

Hello, my name is Miranda Spurr. I am a 24 year young, a mother and wife. I recently became more involved with the National Alopecia Areata Foundation to not only help others, but to help myself. I have had hair loss since 7th grade. It started as small bald patches that would always grow back. Over the years, the spots connected and the hair loss increased rapidly to the point of spreading all over. Now I am somewhere in between Totalis and Universalis. I am so happy to have this opportunity to meet others like myself and guide each other to personal growth. My passions are music, art, reading, writing, painting, nature, cooking, traveling, running, fashion, environmental conservation, philosophy, astronomy, photography, etc!!! I look forward to this experience and hope that we all can work together to make a positive difference in the world.

Hi, I’m Kayla! I'm from a tiny town in Central Pennsylvania called Roaring Spring, it's about 20 minutes from Altoona, Pennsylvania. I have a Bachelor of Science in Early Level Education and absolutely love children! I was diagnosed with alopecia when I was 9 years old. From age 9 to 14 I would find maybe 3-4 bald patches every other year and in the off years my hair would grow back. Then my alopecia was in remission for around 5 years but resurfaced in 2018. This time I lost nearly all the hair on my head, so I decided to shave it. Since shaving my head and embracing the new me I’ve found the confidence that I never knew I had. I’m very outgoing and extremely talkative. I hope to help in any way possible, please reach out! I’m excited to meet you!

Hi! My name is Stephanie Yuen and I’m from Marlboro, NJ. I am currently a high school senior. I lost my hair towards the end of 7th grade. It was a very scary and difficult time for my family and I. We did not know why my hair was falling out. I tried everything to grow it back—from medication, topical ointments, to acupuncture. I would see hair growth; however, my hair would fall out once I stopped a treatment. I was then referred to the Children’s Hospital of Philadelphia, otherwise known as CHOP. I was diagnosed with Alopecia, more specifically, Alopecia Universalis, which is hair loss of the entire body. It was extremely difficult at first; I felt different from everybody else. I would question why I was the one to lose my hair. I was a teenager and I did not know how to handle losing my hair. I had a couple of patches left and I couldn’t cover them up with a powder anymore. Then, I decided to shave my head. It made me feel more free; however, seeing my parents cry made me extremely heartbroken. I am very fortunate to have a great support system in my life—my family, teachers, and friends. They have helped me build up my confidence to embrace my baldness in public. Now, I view Alopecia as a blessing. Without it, I would not have the confidence I have today to go and try new things, be involved in my school and community, and meet all the wonderful people in my life. I’m looking forward to meeting you soon!

Hello, my name is Nicolas Srut, and my Alopecia Universalis is my favorite thing about myself! I was diagnosed with Alopecia Areata at 8 years old, and from that moment on, my life was never the same. In school, I was bullied frequently, but soon learned how to overcome the opinions of others and shine brightly with my Alopecia. The lessons that having Alopecia has taught me about my own character are irreplaceable, and they have made me into the person I am today. I am a recent high school graduate, finished at the top of my class with a 4.0 GPA, was President of the National Honor Society, President of the Court of Magicians, Treasurer of the Thespian Society, and directed a record-breaking UIL One-Act competition play (yes, all at the same time!). I would not have been able to do those things had I not learned to be confident in myself from the struggles Alopecia initially gave me, thus, I am ever grateful for it. Alopecia can be a very beautiful thing, and I want everybody else to see it that way. I have been through quite a journey in my experience with Alopecia, went through lots of ups and downs to make me into who I am today, and I would love to be the mentor to a beautiful mentee and be a positive impact in their journey with Alopecia.

Hi! My name is Lauren. I’m 27 years old and live in the Lansing, MI area. I’m a full time Web Designer, and went to school at Michigan State University and Lansing Community College. I love art; am a photographer in my free time, and I grew up riding horses (I love all animals!). Recently, I’ve taken up meditation and yoga to help deal with anxieties that Alopecia can cause. I’ve pretty much had Alopecia Areata my whole life. The only time I had a full head of hair was when I was born. Around the age of 3, I had no hair on my head, but eventually ended up with patches of hair. I struggled a lot when I was younger, especially when I was in middle school. My mom would try to help me hide my spots using a variety of methods before school every morning, but kids started to figure out that I was hiding something under my bandana or fake pony-tail. The bullying got so bad that I developed PTSD, and became a very depressed and anxious person. To this day, I wish I had someone to talk to and relate to while I was going through these struggles. That is why I am volunteering as a mentor for NAAF: so that I can be the support I wish I had, for someone else who struggles with Alopecia Areata. After moving out and living on my own, I started to figure out that Alopecia should not define my life. I met many wonderful people who have taught me that it’s nothing to be ashamed of, including a wonderful guy who loves me and all my flaws. I started seeing life in a different light, and that things weren’t as bleak as they once seemed. I’ve learned to look past the negative and dark things to truly appreciate the positive things in life, and to be thankful for the life I was given. Even though it’s been a struggle having Alopecia, I feel like it has shaped me into being a wiser and more compassionate person, and I wouldn’t change any of that if I could!

Hi everyone! My name is Scott Weitman and I am a 16 year old junior at Yorktown High School in Westchester County, NY. I was diagnosed with alopecia just before my 4th birthday and my journey has been somewhat of a roller coaster. From kindergarten to middle school, my hair fell out and grew back in cycles. It wasn’t until 6th grade that it all fell out and did not grow back for almost 5 years. I have experienced it all; alopecia areata, alopecia totalis and alopecia universalis. Now at 16, after being bald for 5 years, my hair and my eyebrows have grown back but I am still missing my eyelashes. My family and I have learned that the more we educate our family, friends, and community, the easier it is for me. I also found it valuable to meet other children and adults with alopecia. I traveled to meet Charlie Villanueva at his Charlie’s Angels events, attended several NAAF conferences, and I traveled over 600 miles to meet Ryan Shazier. All these experiences have helped me in my journey to becoming the confident teenager that I am today. Some things that I enjoy doing include watching and playing sports. I currently play Varsity Baseball and Varsity Soccer at my high school. I am a pitcher for the baseball team and a goalie for the soccer team. I love watching football every Sunday and I am a huge Steelers fan. In addition, I play basketball and coach a basketball team for 5th and 6th graders. I also love to play video games especially NBA 2K ‘19. In the winter, I love to go skiing. Growing up with alopecia has taught me how to take adversity and turn it into the opportunity to help others. Even though I have alopecia, alopecia does not have me.

Born and raised in Syracuse, NY, I am the middle child of 5 kids (4 girls and 1 boy). I started losing my hair when I was around 8 years old. No one in my family had experienced hair loss like this before, so I remember going to doctors to figure out what was going on. We tried lots of different treatments, but nothing seemed to be helping. I remember the embarrassment, shame, sadness, and anxiety I felt whenever going out in public or having people in my own home. At times, I felt like no one could ever love me looking the way I did. I experienced bullying at school and was often asked if I had cancer. I was afraid to wear a hat to school, as I did not want to draw attention to myself. I was afraid to go into a pool and get my hair wet, as it made my bald spots show even more. Overall, Alopecia made me afraid of many things. From these experiences, I decided I wanted to spend my life helping children and adolescents that experience anxiety and sadness. Now living in Connecticut, I am currently living that dream as a Licensed Professional Counselor (basically a therapist), working with people of all ages (mostly kids) that struggle with this stuff. On my free time, I love spending time with my 4-year-old identical twin boys, Louis & Luca, going to the beach, doing arts and crafts, trying new foods, listening to music, and laughing as much as possible! When I signed up for this program, I could only think about how my life may have been different if I had someone growing up going through the same thing as me. I hope to provide that for you. From my view, things do not seem as scary when we don’t have to go through them alone. Please reach out with any questions. I look forward to connecting with you!

Hey there, I'm Molly! I'm a 25-year-old touring musician from California now living in Nashville, TN. I love music and travel all over the world performing with my band. I was diagnosed with alopecia universalis at age 3. I went through many stages of acceptance and denial with my alopecia. As a child I wore a lot of hats and transitioned into wearing wigs in high-school. My biggest fear used to be someone finding out that I wore a wig, but now I love telling people that I have alopecia because I think it's an important and amazing part of who I am. I also like to use my music as a platform to let my fans know about alopecia. As a kid, NAAF was an indispensable resource to my family and me. Each time I went to a conference I was able to come out of my shell, and see not having hair as something cool and special about myself. Having someone to talk to year round who understands what it's like to grow up with alopecia would have been so helpful to me so I'm thrilled to be a part of this youth mentor program. In my free time I like doing yoga, going to the movies, reading, writing songs, riding my bike and going to concerts. I'm here to help however I can by lending support, listening, answering questions, being a friend or just having fun together (or all of the above :))!

Hi! My name is Courtney and I’m from Odenton, MD. I’m 23 and studied International Affairs at James Madison University. I’ve had hair loss on and off since I was about 10 or so. Around my senior year of high school the patches got so bad, I decided to take the plunge and shave it all off! From that time on it’s been a lot, from losing eyelashes and wearing wigs, I’ve seen it all and would be happy to talk about my experiences. I’m also interested in all things travel, music, writing, hiking, and t.v shows. I’m excited to meet others and help in any way I can!

Hi! My name is Glenn and I grew up in a small town outside of Syracuse, New York. I’ve been a part of NAAF for four years now. I decided to stop wearing my wig after my third NAAF conference which was the beginning of my junior year in high school. I have made so many friends through NAAF and I’m truly blessed to have found such a great community of support! I have learned through Alopecia to be more confident and embrace my true self. Last year I got my eyebrows tattooed on and I wear eyeliner in place of lashes. I have a few wigs and now I only wear them on the occasion of very cold weather or just wanting to have some hair! I am currently a senior in high school and I’m applying to college for business next fall. I enjoy being outside, playing lacrosse, watching movies and traveling! I’m always up to try something new and learn more about other people! I look forward to talking with you and helping in any way I can!