Events

Ask your local legislators for support of H.R. 7546 and S. 3872 to provide coverage for cranial prostheses (medical wigs) as durable medical equipment under the Medicare program.

Alopecia areata is a common autoimmune skin disease which causes unpredictable, often sudden and severe hair loss, on the scalp and body. Frequently dismissed as a cosmetic condition, alopecia areata is a deeply traumatic experience, resulting in emotional and economic pain and social isolation, especially for children. It is not just hair.

Many individuals living with alopecia areata utilize cranial prostheses to camouflage their hair loss, restore well-being, and support their mental health. Unfortunately, these prostheses can come with a significant out-of-pocket cost for Americans with low or fixed incomes. This is especially burdensome for children, who often require cranial prostheses for attending school.

Currently, the Social Security Act determines which products are considered “durable medical equipment” for the purposes of Medicare coverage. It includes crutches, oxygen tanks, and prosthetics. However, the definition of a “prosthetic” does not specifically include cranial prostheses, which can lead to coverage challenges. Private insurance and other payers often base their coverage policies and standards on Medicare.

Take action to show your support for the 7 million Americans living with alopecia areata. Click the button below to send emails to your legislators to co-sponsor H.R. 7546 and S. 3872. 

This support group is an ideal place to come and talk with others about living with alopecia areata. It is the place to gain knowledge from those who have had years of experience. With time comes the ability to deal and cope with your own hair loss or that of a loved one. We are very fortunate that so many are willing to bring to the meetings their wisdom and advice to share in a direct but compassionate manner that reflects understanding and concern. The support group experience has its rewards for all who attend.

Upcoming Virtual Meetings:

June 15, 2026

August 17, 2026

October 19, 2026

*Note:  If this is your first time attending, you must RSVP and fill out a form prior to attending.

Your Host:  Mary

Mary has lived with alopecia for over 25 years. She’s a psychotherapist experienced working with children, adults and families. This support group is aimed at providing those living with alopecia emotional support, material resources, and a place to share their experiences. This virtual support group is open to adults living with alopecia, children and their caregivers.

2026 Meeting Schedule:

May 18, 2026

June 15, 2026

July 20, 2026

August 17, 2026

September 21, 2026

October 19, 2026

November 16, 2026

December 21, 2026

This support group is an ideal place to come and talk with others about living with alopecia areata. It is the place to gain knowledge from those who have had years of experience. With time comes the ability to deal and cope with your own hair loss or that of a loved one. We are very fortunate that so many are willing to bring to the meetings their wisdom and advice to share in a direct but compassionate manner that reflects understanding and concern. The support group experience has its rewards for all who attend.

This support group is an ideal place to come and talk with others about living with alopecia areata. It is the place to gain knowledge from those who have had years of experience. With time comes the ability to deal and cope with your own hair loss or that of a loved one. We are very fortunate that so many are willing to bring to the meetings their wisdom and advice to share in a direct but compassionate manner that reflects understanding and concern. The support group experience has its rewards for all who attend.