News & Events: Research
Alopecia Areata Research Study
This information does not represent a NAAF endorsement of this study, but makes you aware that this clinical study is available for your participation if you choose. If you are presently under the care of a physician for alopecia areata, or other conditions, you should discuss this study with your doctor before altering your treatment program.
Alopecia Areata Research Study!
You may qualify to participate in a clinical research study involving an investigational use of a marketed drug in patients suffering from alopecia areata. Study participation will include medical questionnaires, physical examinations, scalp photographs, vital signs and blood tests.
You may qualify to participate in this study if you:
• Are 18 to 70 years of age
• Have been diagnosed with patchy alopecia areata that affects more than 50% of your scalp
• Have been diagnosed with alopecia totalis
You will not qualify for the study if you:
• Have alopecia universalis
• Experienced significant spontaneous regrowth of terminal scalp hair within the last 4 weeks
• Have a history of androgenic alopecia
All office visits, medications, and medical evaluations related to this study will be provided without charge. Participants may also receive compensation for time and travel.
If you live in the vicinity of the locations listed below and would like to find out if you qualify to be a participant, or have further questions about this study, please call one of the investigators listed below.
Participating Investigators include*:
Investigator Location Contact Phone
Elaine C. Siegfried, MD Central Dermatology
St. Louis, MO (314) 721-5565
Janet L. Roberts, MD Northwest Cutaneous Research Specialists
Portland, OR (503) 223-1933
David A. Whiting, MD Baylor Hair Research and Treatment Center
Dallas, TX (214) 824-2087, extension 223
Elise A. Olsen, MD Duke University Medical Center
Durham, NC (919) 620-5351
Maria K. Hordinsky, MD University of Minnesota
Minneapolis, MN (612) 625-4973
Elyse S. Rafal, MD DermResearch Center of NY, Inc.
Stony Brook, NY (631)689-1900
Vera H. Price, MD University of California, San Francisco
San Francisco, CA (415)476-9350
*Note: As Investigators begin enrolling in this study, this section will be updated as appropriate. Please check back if your location is not listed at this time.
Study being conducted at NYU
Study Participants Needed in New York City
NYU School of Medicine is currently recruiting subjects to participate in an experimental study for treating alopecia areata.
To qualify, you must:
- be between the ages of 18 and 65 years of age
- have 50-95% patchy scalp hair loss caused by alopecia areata
- have had hair loss diagnosed as alopecia areata (not male pattern or female pattern hair loss) for at least one year
The study involves:
- 16 visits over 24 weeks
- injections by nurse in office every week
- 50% chance of a fake medicine (placebo)
- blood draws and photos
If interested, please contact Judy Wang at 212-263-6881.
Study Participants Needed in Minnesota
Study Participants Needed in Minnesota
The Department of Dermatology at the University of Minnesota is currently recruiting subjects to participate in an alopecia areata (hair loss) research study.
To qualify, you must:
- be between the ages of 18 and 65 years of age
- have 50-95% patchy scalp hair loss caused by alopecia areata
- have had hair loss diagnosed as alopecia areata (not male pattern or female pattern hair loss) for at least one year
The study involves:
- 17 visits over about 24 weeks
- injections by nurse in office every week
- 50% chance of receiving active research medicine
- 50% chance of receiving a dummy medicine (placebo)
- blood draws and photos
- NO cost to you
If interested, please contact our research coordinator, Cathy Boeck, at 612-625-4973.
Study Participants Needed in Winston-Salem, NC
Study Participants Needed in Winston-Salem, NC
Wake Forest University School of Medicine is currently recruiting subjects to participate in a research study for treating alopecia areata (hair loss).
To qualify, you must:
- be between the ages of 18 and 65 years of age
- have 50-95% patchy scalp hair loss caused by alopecia areata
- have had hair loss diagnosed as alopecia areata (not male pattern or female pattern hair loss) for at least one year
The study involves:
- 16 visits over 24 weeks
- injections by nurse in office every week
- 50% chance of a active research medicine/50% chance of non-active research medicine (placebo)
- blood draws and photos
- all at NO cost to you
If interested, please contact our research assistant, Susie Dowd at 336-716-3775.
Study Participants Needed in Salt Lake City, Utah
Study Participants Needed in Salt Lake City, Utah
The Department of Dermatology at the University of Utah School of Medicine is currently recruiting subjects to participate in a research study for treating alopecia areata (hair loss).
To qualify, you must:
- be between the ages of 18 and 65 years of age
- have 50-95% patchy scalp hair loss caused by alopecia areata
- have had hair loss diagnosed as alopecia areata (not male pattern or female pattern hair loss) for at least one year
The study involves:
- 16 visits over 24 weeks
- injections by nurse in office every week
- 50% chance of a active research medicine/50% chance of non-active research medicine (placebo)
- blood draws and photos
- all at NO cost to you
If interested, please contact our Research Assistant Amanda Wallace at 801-585-6729.
DNA/NAAF, A Natural Partnership to Promote the Registry
Partnership Between the National Alopecia Areata Foundation (NAAF) & the Dermatology Nurses Association (DNA)
Why Form a Partnership?
We are fortunate that we recognized the natural partnership between the Dermatology Nurses Association (DNA) and the National Alopecia Areata Foundation (NAAF) in promotion of the Alopecia Areata Registry. With the DNA’s mission highlighting the importance to develop and promote education and nursing leadership in dermatologic care, and NAAF’s mission to support research to find a cure or acceptable treatment for alopecia areata, to support those with the disease and to educate the public about alopecia areata, a common connection would be working with the patients, in a clinical setting, in an effort to minimize the hardship associated with alopecia areata.
How Can I Be Involved?
You can help patients with alopecia areata and win all expenses paid to the DNA convention in San Francisco, 2006. Members of the Dermatology Nurses Association now have the motivation to help their patients participate in the Alopecia Areata Registry. The two members who register the most patients between now and December 1, 2005, will automatically receive FREE transportation to, hotel during, registration for, and an expense stipend (total maximum $2000) towards the 2006 DNA Convention to be held in San Francisco, CA. The next five members with top registration numbers will receive complimentary registration to the 2006 DNA Convention.
What is the Alopecia Areata Registry?
The registry will provide materials to facilitate research and investigation in all areas associated with alopecia areata. Detailed data on the natural history of alopecia areata, and on the epidemiology of disease will be very useful to understand who gets this disease, how it progresses, and other diseases with which it is associated. DNA from patients collected in the second tier of the registry will greatly facilitate genetic studies, allowing power far beyond that achieved by any one investigator at one site. Careful collection of detailed clinical information will facilitate genetic studies of disease subsets, leading to new genetic insights. New investigators may do immunologic and other studies who don’t have access to their own group of carefully defined alopecia areata patients.
How do I Register Patients?
Registering patients is easy to do. Simply go to www.alopeciaareataregistry.org, click on the Enroll Here link on the sidebar, and click on Short Form Questionnaire. The Short Form is the First Tier (T1) of this Registry. Both affected and unaffected family members should be urged to complete the Short Form, and you will receive credit for each individual you register. To assure that you receive credit for your registration, make sure the patient/family member lists Your Name, medical degrees where it asks for the dermatologist’s name. Also please include DNA on the same line. You can have the patient complete the form online. If they don’t have computer access you can print out copies from the website and have the patient mail the short form to the PI site in Houston. Complete your name and DNA on the dermatologist line before giving the hard copy to the patient.
Registry Link
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